VHL UK/Ireland Patient Support Day 2026
Event Discussion
Connect with attendees, ask questions, and see who's going.
Accessly Creators
The Story & Vibe
Join us at the Holiday Inn Birmingham Airport on November 14, 2026, for the VHL UK/Ireland Patient Support Day, a special gathering designed to uplift and support those affected by VHL, HLRCC, and BHD. This in-person event is packed with insightful sessions led by clinical experts like Professor Eamonn Maher and Dr. Scott Shepherd, covering essential topics such as Belzutifan and how to manage the physical, financial, and emotional challenges of living with a chronic illness. This day is all about connection! Whether you're newly diagnosed or a seasoned VHL warrior, you'll find a welcoming community of families sharing similar experiences. Come learn, share, and support one another on this journey. Plus, your ticket (£3) not only grants you access but also enters you into our fun tombola for a chance to win a VHL UK/Ireland t-shirt. We can't wait to see you there! 🎉 If you have any accessibility or dietary needs, just reach out to us at support@vhl-uk-ireland.org.
- Guests must behave respectfully toward the creator, staff, venue, and other attendees.
- Please arrive on time and follow the confirmed schedule.
- Harassment, abuse, intoxicated misconduct, or illegal activity is not allowed.
- Venue rules, safety instructions, and local laws must be followed at all times.
- The creator may refuse entry or remove anyone who violates these guidelines.
All ACCESSLY experiences are public or structured group activities. Active moderation and reporting systems are in place.
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